Community Advisory Board

Terry and Jacque Capistrant

Terry and Jacque Capistrant have lived in St. Paul most of their lives. Jacque attended Derham Hall and St. Catherine’s college and Colorado College. She worked at the University of Minnesota libraries and studied interior design. After raising three sons Jacque put her training in art to use as a freelance interior designer and helping manage a woman’s apparel store.

Terry went to Cretin High School and then did his undergraduate work, medical school and post grad (Neurology) training at the University of Minnesota. Terry served as an assistant professor of neurology for two years at St. Paul Ramsey hospital before entering private practice for 29 years. He helped found the Neurological Associates of St. Paul. Terry developed the tell-tale signs of Parkinson’s Disease in 1995 and by 1998 it progressed to the point where he was forced to retire. He was asked by HealthEast administration to help form a Center for Parkinson’s disease in 2005. With the help of Jacque as caregiver along with the good advice of the doctors, Terry has continued to golf, hunt, play golf and lead a “near normal” life. One fact that seemed to define success in PD treatment was exercise and involvement in a variety movements.

Ross Collins

Ross CollinsRoss Collins, the son of two physicians, grew up in Texas. After medical school at Stanford he moved to Minneapolis for his postgraduate medical training. He went on to practice cardiology in the Twin Cities for more than 25 years.

Collins expected to practice medicine as his parents had, until he was at least 70.  However, his plans changed. In 2007, at the age of 60, he developed a tremor and in 2009 he was diagnosed with Parkinson’s disease. With the support of his practice associates, he continued a limited practice until he retired in 2010.

Since retirement, he has volunteered as a Health Insurance Counselor with the Metropolitan Area Agency on Aging, he has been active on the Park Nicollet Methodist Hospital Patient and Family Council.

He has also developed a new life outside of Medicine. Since retirement, he and his wife, Dr. Laurel Krause, have travelled to Scotland, Australia, New Zealand and Alaska. His new peers at the Struthers center have supported him as he rediscovers the pleasures of regular exercise, skiing, bicycling, travel and good companionship.

Most importantly, he has learned that with the help of his family, and the Struthers Parkinson’s Center, life with Parkinson’s can be very good.

Cynthia Entzel

Cynthia Entzel, a graduate of the 2009 Clinical Research Learning Institute, believes in the importance of research and encourages people to participate in clinical trials for Parkinson’s disease. She has always led an active lifestyle and lives by her motto,“I do as much as I can for as long as I can.” In 2000 and 2001 she wrote articles for the Parkinson’s Post newsletter. Entzel had Deep Brain Stimulation (DBS) surgery in June of 2008 and participates in DBS information sessions at Struthers Parkinson’s Center answering questions from potential DBS candidates and caregivers. Currently she is earning her BA at Metropolitan State University.

Ruth Lotzer

Ruth Lotzer’s life plans were interrupted by PD when I was diagnosed at age 42. Although interrupted by PD, Lotzer’s life continues. She try to stay on the positive side of life by putting  God, family and herself at the top of her priority list. Her family, husband, Randy; son, Brendan (19) and daughter, Bridget (17) and I live in Bloomington.

Living with PD can be hard but Lotzer has found that exercise and being involved in the PD world makes it a lot easier.  Some of the ways she is involved include PD studies at the Struthers Parkinson’s Center, has been trained as a PDF Clinical Research advocate; has been to Capitol Hill in Washington, D.C. as a PAN representative (that explains the photo.) Lotzer also manage and started a support group for young women who have PD.

She enjoys creating things, especially using old things to make new things. Crafting for PD keeps her very busy, making pins and necklaces from old keys, pins from old buttons, jewelry racks from old shelf racks and key chains from old t-shirts. The profits earned from selling her craft are donated to various PD organizations.

Liz Ogren

Liz Ogren is a 5th grade teacher, Bruce’s wife, mother of teenagers Alex and Evan, and companion of her cockapoo Murphy. After being diagnosed with PD in 2007, she briefly became a couch potato. Her family encouraged her “off the couch” and into a daily exercise routine. What a difference exercise makes! Orgren founded a biking organization called Pedal and Roll for Parkinson’s to encourage others with PD to get off their couch and enjoy the benefits of exercise. Visit www.pedalandroll.org